“I’m usually the first deaf patient they meet.” Medical staff often lack training and cultural competency when working with deaf and hard of hearing patients, leaving us to navigate many barriers in an auditory- and English-centric healthcare system. These challenges include:
The constant need to educate and advocate for access can be exhausting. It’s time for a more inclusive healthcare system and society.
These insights came from powerful discussions at the 2024 NextGen Accessibility Summit hosted by TDI on information and communication technologies: https://tdiforaccess.org/.
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Video Description: The post has a video thumbnail with a blue background. The top has a logo of TDI with “2024: NextGen Accessibility Summit” with the middle "The constant need to advocate for access" in white text with rose background. A woman with blonde wavy hair is sitting in front of the camera with shelves, books, and decorative items behind her. She is wearing a navy blouse. Four other panelists are below.
Transcript: The medical system is incredibly strongly based on English and auditory expectations. They set alarms for when something's wrong, there's an emergency, or a room needs attention—it's all auditory-based. Even calling the patient's name when they walk out for the doctor's office is auditory-based. We see so much of this—English and audio are just so entrenched in the healthcare system. Healthcare information, like forms and consent forms, is incredibly complicated English for non-native users and sometimes it's beyond the literacy capacity of some of our community members to comprehend and access that complex healthcare information. On top of that, of course we also have to navigate so many different doctors and providers who just aren't aware or familiar with how to interact with a deaf or hard-of-hearing patient. I'm often the 'first deaf patient' they've ever seen, and they have to navigate and learn, which takes a lot of advocacy and a lot of education. We've all mentioned that already: it's that constant need to educate and advocate for what our needs and rights are. [The screen fades to show a thumbnail of a faded white background of a doctor holding hands with another individual.] Deaf. Healthy. DeafHealth. Learn more at www.deafhealthaccess.org.] [The screen fades to show a logo of TDI].